An Ethics Action Plan for Rare Disease Care: Participatory Action Research Approach

JOURNAL ARTICLE published 23 November 2023 in Journal of Participatory Medicine

Authors: Ariane Quintal | Isabelle Carreau | Annie-Danielle Grenier | Caroline Hébert | Christine Yergeau | Yves Berthiaume | Eric Racine

Spanish-Speaking Hispanic Patients’ Information-Sharing Preferences During Hospitalization: An Exploratory Pilot Study

JOURNAL ARTICLE published 6 December 2018 in Journal of Participatory Medicine

Authors: Marge Benham-Hutchins | Sharon A Brown | Erin E Donovan | Henry Guevara | Alisha H Johnson

Involving Citizen-Patients in the Development of Telehealth Services: Qualitative Study of Experts’ and Citizen-Patients’ Perspectives

JOURNAL ARTICLE published 12 November 2018 in Journal of Participatory Medicine

Authors: Hassane Alami | Marie-Pierre Gagnon | Jean-Paul Fortin

Your Patient Has a New Health App? Start With Its Data Source

JOURNAL ARTICLE published 17 June 2019 in Journal of Participatory Medicine

Authors: Keith E Morse | Jonathan Schremp | Natalie M Pageler | Jonathan P Palma

A Norm-Creative Method for Co-constructing Personas With Children With Disabilities: Multiphase Design Study

JOURNAL ARTICLE published 6 January 2022 in Journal of Participatory Medicine

Authors: Britta Teleman | Petra Svedberg | Ingrid Larsson | Caroline Karlsson | Jens M Nygren

The Participatory Zeitgeist in Health Care: It is Time for a Science of Participation

JOURNAL ARTICLE published 10 January 2020 in Journal of Participatory Medicine

Authors: Victoria Jane Palmer

Participatory Methods to Engage Health Service Users in the Development of Electronic Health Resources: Systematic Review

JOURNAL ARTICLE published 22 February 2019 in Journal of Participatory Medicine

Authors: Gaye Moore | Helen Wilding | Kathleen Gray | David Castle

Perceived Need for Psychosocial Support After Aortic Dissection: Cross-Sectional Survey

JOURNAL ARTICLE published 6 July 2020 in Journal of Participatory Medicine

Authors: Gunther Meinlschmidt | Denis Berdajs | Roger Moser-Starck | Alexander Frick | Sebastian Gross | Ulrich Schurr | Friedrich S Eckstein | Sabina Hunziker | Rainer Schaefert

The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents

JOURNAL ARTICLE published 23 April 2024 in Journal of Participatory Medicine

Authors: Janine Benjamins | Emely de Vet | Chloe A de Mortier | Annemien Haveman-Nies

Patients’ Perspectives on Plans Generated During Primary Care Visits and Self-Reported Adherence at 3 Months: Data From a Randomized Trial

JOURNAL ARTICLE published 14 March 2024 in Journal of Participatory Medicine

Authors: Cheryl D Stults | Kathleen M Mazor | Michael Cheung | Bernice Ruo | Martina Li | Amanda Walker | Cassandra Saphirak | Florin Vaida | Sonal Singh | Kimberly A Fisher | Rebecca Rosen | Robert Yood | Lawrence Garber | Christopher Longhurst | Gene Kallenberg | Edward Yu | Albert Chan | Marlene Millen | Ming Tai-Seale

Examining Patient Engagement in Chatbot Development Approaches for Healthy Lifestyle and Mental Wellness Interventions: Scoping Review

JOURNAL ARTICLE published 22 May 2023 in Journal of Participatory Medicine

Authors: Chikku Sadasivan | Christofer Cruz | Naomi Dolgoy | Ashley Hyde | Sandra Campbell | Margaret McNeely | Eleni Stroulia | Puneeta Tandon

Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers

JOURNAL ARTICLE published 16 November 2022 in Journal of Participatory Medicine

Authors: Therese Scott Duncan | Jon Engström | Sara Riggare | Maria Hägglund | Sabine Koch

Supporting the Implementation of Connected Care Technologies in the Veterans Health Administration: Cross-Sectional Survey Findings from the Veterans Engagement with Technology Collaborative (VET-C) Cohort

JOURNAL ARTICLE published 30 September 2020 in Journal of Participatory Medicine

Authors: Bella Etingen | Daniel J Amante | Rachael N Martinez | Bridget M Smith | Stephanie L Shimada | Lorilei Richardson | Angela Patterson | Thomas K Houston | Kathleen L Frisbee | Timothy P Hogan

Best Practices for Virtual Engagement of Patient-Centered Outcomes Research Teams During and After the COVID-19 Pandemic: Qualitative Study

JOURNAL ARTICLE published 11 March 2021 in Journal of Participatory Medicine

Authors: Erin K Thayer | Molly Pam | Morhaf Al Achkar | Laura Mentch | Georgia Brown | Traci M Kazmerski | Emily Godfrey

Evaluating a Global Assessment Measure Created by Standardized Patients for the Multiple Mini Interview in Medical School Admissions: Mixed Methods Study

JOURNAL ARTICLE published 30 August 2022 in Journal of Participatory Medicine

Authors: Ann Blair Kennedy | Cindy Nessim Youssef Riyad | Ryan Ellis | Perry R Fleming | Mallorie Gainey | Kara Templeton | Anna Nourse | Virginia Hardaway | April Brown | Pam Evans | Nabil Natafgi

Co-design of the Transgender Health Information Resource: Web-Based Participatory Design

JOURNAL ARTICLE published 10 January 2023 in Journal of Participatory Medicine

Authors: Brad Morse | Andrey Soares | Kate Ytell | Kristen DeSanto | Marvyn Allen | Brooke Dorsey Holliman | Rita S Lee | Bethany M Kwan | Lisa M Schilling

Improving Health for People Living With Heart Failure: Focus Group Study of Preconditions for Co-Production of Health and Care

JOURNAL ARTICLE published 11 May 2021 in Journal of Participatory Medicine

Authors: Anne-Marie Suutari | Johan Thor | Annika M M Nordin | Sofia Kjellström | Kristina Areskoug Josefsson

Actionable Items to Address Challenges Incorporating Peer Support Specialists Within an Integrated Mental Health and Substance Use Disorder System: Co-Designed Qualitative Study

JOURNAL ARTICLE published 26 November 2020 in Journal of Participatory Medicine

Authors: Margaret Almeida | Annie Day | Bret Smith | Cynthia Bianco | Karen Fortuna

SUicide Prevention by Peers Offering Recovery Tactics (SUPPORT): Including Lived Experience Voices to Develop a Peer Specialist-Delivered Suicide Prevention Program for U.S. Veterans with Serious Mental Illness (Preprint)

JOURNAL ARTICLE published 9 January 2024 in Journal of Participatory Medicine

Authors: Samantha A. Chalker | Jesus Serafez | Yuki Imai | Jeffrey Stinchcomb | Estefany Mendez | Colin A. Depp | Elizabeth W. Twamley | Karen L. Fortuna | Marianne Goodman | Matthew Chinman

Application of Community-Engaged Research to Inform the Development and Implementation of a Peer-Delivered Mobile Health Intervention for Adults With Serious Mental Illness

JOURNAL ARTICLE published 19 March 2019 in Journal of Participatory Medicine

Authors: Karen Fortuna | Paul Barr | Carly Goldstein | Robert Walker | LaPrincess Brewer | Alexandra Zagaria | Stephen Bartels